Finally started feeling like myself again on Saturday! It seems so trivial to be able to say I could go grocery shopping and go to the mall, but those were huge steps for me. I felt good for the first time in days. I had an interesting discussion with people at church today about a cure for MS. A few months ago, David Lander (who played Squiggy on Laverne & Shirley) spoke at an MS conference … [Read more...] about
Archives for September 2002
Home from work for the second day in a row. Hopefully this will do the trick, and I'll get my energy back. I'm learning that it's all right to be honest about being tired. I've tried to be polite and not burden people, but I'm giving up on that route. Last night, I went to choir practice, and someone gave me a hard time because we only show up when one of us has a solo. Well, a major reason … [Read more...] about
One of the scariest things about this stupid illness is wondering whether something you feel is "normal" or the start of an MS attack. A couple of days I got very, very tired and starting having headaches. If it weren't for MS, I'd just be thinking, "Oh, I've just been pushing myself too hard. And with the recent weather changes, it's not a surprise that my sinuses are acting up." Instead, … [Read more...] about
Well, last night was the first time I was alone for my shot. Things went fine. I do have a nice big bruise at the needle site. I still have to learn how to get the gauze pad unsealed and ready while holding the syringe. I bruised because I jiggled the syringe. The bruise doesn't hurt. I've had fewer side effects this time, and I haven't had to be so faithful on the medicine. In other words, … [Read more...] about
Talked to my Avonex nurse Lorie (sp?) a couple of days ago. She's nice and seems quite knowledgeable about the medicine and what sort of things for me to expect. When I told her about my experiences with Aleve and Tylenol, she told me that she's heard that some medicines work better for some patients than for others. She also told me to leave my medicine out for an hour before shot time to let … [Read more...] about
Well, this weekend didn't go as smoothly as the two previous. I was supposed to take the shot in the side of my leg today, and I didn't get it far enough to the side. I bled a little more, but it was still OK. I decided to try Aleve this time instead of Tylenol. I didn't get any chills, and I did sleep through the night, but I ached horribly when I woke up. I felt bleah, much worse than the … [Read more...] about