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Feb 27, 2013
Uncategorized

MS Is Not the Worst Thing

My 8-year-old had a bacterial infection that kept him out of school for 7 days.  Just when it looked like he was getting better, his fever would shoot back up.  He was sleeping downstairs in the family room on the chair-and-a-half, while I would sleep on the couch in case he needed me during the night.  One of the nights he needed me, we ended up having a serious talk.

In typical 8-year-old fashion, he said, “I hate being sick.”

I told him that I hated when he was sick too.  Then I told him that I’m glad I’m the one who has the sickness that won’t go away instead of him or his brother.  His eyes grew wide.  “Really?”  he asked.

I nodded.  “Really.”  Then I told him about when he was a baby, and it was time for him to get his first vaccination.  Here I was, someone who had gotten lots of shots, and who had even given herself a bunch, and I was crying because my baby was getting one.  I was a basket case during that appointment – sure, I knew he had to have the vaccines, that I couldn’t risk him getting one of those awful diseases which would be so much worse than a little shot.  But he was in pain, he was crying…and I couldn’t make it go away.  I could just comfort and love him after it was over.

We talked about my hospitalization last year – I was in for a week due to a blood clot in my leg.  I told him that even though I was very lonely in the hospital, I was so glad that Daddy had been home with them each night instead of being at the hospital with me.  They needed him more than I did, and I felt better knowing that he was with them.

He finally went back to school today, to everyone’s delight.  He’s sneezing a bit, but his fever and dreadful cough are gone.  When I picked him and his brother up after school, they greeted me with smiles and hugs.  I laughed with them while they read their homework books to me, and I cuddled with them as I read Prince Caspian to them before they went to sleep.

Every time I start to feel sorry for myself for having MS, I look at the faces of my beautiful boys.  They are healthy, they are doing well in school, they have friends.  They have a happy childhood with parents who adore them.  Then I remind myself how blessed I am to be able to say those things.  I know a family whose daughter is close to my son’s age, and the little girl has been battling leukemia for the past year.  I know of families whose children suffer from terrible disabilities.  I know families who’ve had to bury children – an agony I don’t even want to imagine.  I ache for children who are caught in the cycle of abuse.  And I know that there is one thing that I can say with absolute certainty:

I would much rather have MS than watch children suffer.

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I am Amy Sparks. I'm a mom living w/chronic illness while parenting a tween and teen. We all need to speak up. Read More…

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