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Sep 7, 2014
Uncategorized

I’m Back

Well, there’s some dust to clean off here, but I’m back.  Been dealing with a number of challenges since that last post months ago.  Some ups, some downs, and all of it part of the chaos we call life.

Yes, there were times when MS reared its ugly head.  Summer in southeast US means plenty of that MS kryptonite called heat.  It’s been a more merciful summer, but it’s still included enough of the heat and humidity to leach at my energy.  The annual MS MRI was mostly good news.  There had been slight activity since my previous MRI, but we think it was because I had to be completely off of MS medicine between ending Tysabri and starting Gilenya.  None of the activity was active, which was a relief.

I’m still falling.  The worst one was on the day of my MRI.  I had to have IV valium to get into the tube, so I was a little groggy when I got home.  I tripped on a rug and was heading straight for the oven.  I was able to tilt my head so my chin didn’t land on the lower oven door handle, but that meant taking the brunt of the fall on my left elbow.  That was a huge, ghastly color palate for a few weeks. But if I had hit my chin…I don’t even want to think about the potential impact on my head and neck.

On the plus side, I’ve started taking ampyra to help with my walking speed.  I had taken it before, but I didn’t think it was having much of an impact on my walking speed.  Then I found out what the word slow really meant, and was glad to get back on it.  I’m feeling a bit better now.  I won’t set any speed records, but progress is progress.

So now it’s just a matter of getting the good habits going.

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I am Amy Sparks. I'm a mom living w/chronic illness while parenting a tween and teen. We all need to speak up. Read More…

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