Blog

Had a good checkup with the neurologist this week. He wants to see me every 3 months to check on my progress, see if the Rebif is working for me, and to get my blood checked to make sure these meds aren't killing my liver. He called back the next night to tell me that this blood test came back just fine. They all have. I still laugh when I think about my mother's reaction to an article she read … [Read more...] about Checking In

The weird thing about having MS? I feel a HUGE sense of relief when I'm not feeling well and know it's because of something other than MS. Like this summer when I broke my toe - I didn't break it because of MS balance issues, I just broke it because of normal clumsiness. I felt like crap earlier today. I was tired, my brain was scattered, and I wasn't in the mood to get much of anything done. I … [Read more...] about Weird Reactions to Health

It's been awhile since the second opinion, and things have been fairly routine. Haven't had any major issues, but have had to deal with some of those annoyances that come along with MS. But I've learned to adapt. For example, I've learned that I better have a spare pair of pants and underwear at work, in case those unpleasant bladder problems led to an accident. It's only happened once at work, … [Read more...] about Health Update

Tomorrow, I'm getting a second opinion. It was my neurologist's suggestion that I have someone else weigh in on my case. He's been treating me for 6 1/2 years, so we're getting someone else to check me out now too. So tomorrow I drive nearly three hours...after I pick up a copy of my MRI at the radiologist and my records at the neurologist. And on the normal side, I'm getting my cholesterol … [Read more...] about Second Opinion

I've never been graceful, but these days, I have an excuse for walking like Frankenstein. On the plus side, I like being able to explain why I'm clumsy...instead of just saying that I'm clumsy. I have another doctor's appointment at the beginning of May. Part of me dreads that the neurologist is going to bring up Tysabri again. Yes, it's beneficial for lots of folks, but it's also been fatal. I … [Read more...] about Clumsy

An Update I've been on the meds for a few months, and so far, so OK. Things haven't been great, they haven't been bad. My side effects haven't been horrendous, but there have been times that they've been able to shut me down for awhile. I still have to get used to listening to myself and take the rest when I need it, where I need it. When I pay attention to my meds and take the well-timed nap, … [Read more...] about Health Update