Blog

One of the daily challenges with multiple sclerosis is that people don't understand what we're going through on a daily basis.  They don't understand the unpredictability of the disease.  They don't understand why we can be fine one day and unable to work the next. That's been a nagging thought in my head as I've followed the news of the Jovan Belcher tragedy.  The Kansas City Chief killed his … [Read more...] about They Just Don’t Understand

I've decided to participate in BlogHer's NaBloPoMo,  a challenge to blog daily for the month of December.  Today's theme is work. Those of us with Multiple Scleroris understand the meaning of work.  Every day, we have to work more to do what's easy for most people.  Some of us are able to work despite our condition, while others have had to give up meaningful careers that are no longer … [Read more...] about Work and Inspiration

It's the holiday shopping season, where shopaholics will wait in line (some over the Thanksgiving holiday) to participate in the rush for Black Friday sales.  Do I do this?  NO.  I will confess that years ago, I went to a Toys 'R' Us at 6am to make sure I got a particular present for my son.  I'm dating myself with that comment, because Toys 'R' Us now opens up for shopping at 8pm on Thanksgiving … [Read more...] about Holiday Shopping

One of the hardest things about multiple sclerosis is the hateful things other people say, intentionally or unintentionally. The election's over, but the mudslinging continues.  God help you if you're unemployed, dealing with health issues...or both.  People will make assumptions, some of them quite unkind.  I read a comment tonight where someone wished he could just leave his job and suck on … [Read more...] about Post-Election Blues

November may not be multiple sclerosis awareness month, but there are still a number of events to keep MS in mind during November. Election Day - A huge day for MS patients.  Given the battles over healthcare costs and legislation, it's important for MS patients to make their voices heard.  Both of the candidates have family connections to MS - Ann Romney and Michelle Obama's father - so both … [Read more...] about November Challenges

Since I'm a mom with multiple sclerosis, I'm always on the lookout for ways I can be involved in a positive way in their parenting.  One of the best ways I've discovered for quality and enriching time with them is reading.  This activity does not require physicial prowess or cause much fatigue, but it brings us closer in a way while helping them to learn.   What to read? Most of the … [Read more...] about Reading With Kids