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This week is officially MS Awareness Week.  There's been a little voice inside of me saying, "You should be blogging every day during MS Awareness Week.  You need to do your part to educate and advocate." Then real life gets in the way.  I don't sit down and reflect on MS because I'm too busy doing things that MS doesn't prevent me from doing.  In a way, I'm acknowledging MS this week by … [Read more...] about MS Awareness Week

You'd think after living with MS for 11 years that I'd remember the lessons I've learned along the way.  Like the importance of staying out of the hot sun in the summertime (in other word, act like a vampire on True Blood without the bloodsucking part).  Like making sure I keep track of my prescriptions so I don't suddenly run out of important medication.  And listening to that little voice in my … [Read more...] about Oops, I (Almost) Did It Again

It feels comfortable to just blend into the crowd.  But if I don't speak out, how can I expect others to do so? It was student-led parent-teacher conference night...for all students.  I thought I'd get there in plenty of time to shop at the Book Fair, pick up my son, and head to his conference.  Then I headed over to the school.  My first suspicion should have arisen when I saw all of the cars … [Read more...] about FInding Your Voice

My 8-year-old had a bacterial infection that kept him out of school for 7 days.  Just when it looked like he was getting better, his fever would shoot back up.  He was sleeping downstairs in the family room on the chair-and-a-half, while I would sleep on the couch in case he needed me during the night.  One of the nights he needed me, we ended up having a serious talk. In typical 8-year-old … [Read more...] about MS Is Not the Worst Thing

MS is sometimes used as a plot point by television shows.  Normally, I cringe when one of my shows tries it, because I get too frustrated by what they get wrong.  I don't expect TV programs to be giant public service announcements, but I get irritated when the shows pass along misinformation and perpetuate stereotypes. I was concerned when I found out that a character on my favorite soap … [Read more...] about MS and TV

Most multiple sclerosis symptoms and exacerbation don't lead to a trip to the emergency room, but it's better to be prepared.  Since people with MS are dealing with more health issues and medicines than many in the population, and since people without MS can end up in the emergency room for all sorts of reasons, it makes sense to have a few things in order just in case. I'm speaking from … [Read more...] about Welcome to the ER