On May 27, the FDA approved Zinbryta (daclizumab) for treatment of relapsing-remitting multiple sclerosis (RRMS). It can be prescribed to those who had inadequate response to two or more of the disease-modifying drugs. It’s a once a month self-injection. I’m astounded how many medicines are available these days. I was diagnosed the week that Rebif became the fourth approved … [Read more...] about Which MS Drug Is Best For You?
Archives for May 2016
Independence
May 25th is World MS Day. This year’s theme is Independence. #strongerthanMS MS doesn’t stop me from being me. I’m a purple person, so of course my rollator is purple (her name is Violet). I don’t walk around with a sterile medical cane. My cane is covered in neon bubbles. MS does not take away my personality – it just gives me some different opportunities to show it … [Read more...] about Independence
Using a calendar
What is My MS Toolset? I have assembled a set of tools to help manage my MS. Tips, tricks, apps, checklists - anything that can make it easier to stay prepared for the unpredictable life with MS. Before I was diagnosed with MS, I thought I did a good job of handling my life. Everything was so uncomplicated – just my wonderful husband, our adorable house, and my satisfying job. I … [Read more...] about Using a calendar
Bad publicity
I hate the MS pill TV ads. I don’t hate the drug – or any other disease-modifying treatments (DMTs). On the contrary, I am a firm advocate for those medicines because of how much they’ve helped me since my diagnosis. But I don’t like any misrepresentation of multiple sclerosis, and that ad definitely gives the wrong impression about what those drugs do. Have you seen the ad? A woman is just … [Read more...] about Bad publicity
New Situations
People who know what a chatterbox I am would be shocked to know how nervous I am to meet new people and be in a new situation. Once I get to know you, I'll talk your ear off, but in a new situation I try to blend into the nearest wall. According to the multiple Myers-Briggs tests I've taken, I'm borderline extrovert/introvert. My sister laughs when I say it, accusing me of fudging my … [Read more...] about New Situations